1 in 10 people in the United States have a rare disease. Come connect with others who are interested in or have been impacted by rare diseases to hear about current research efforts in rare diseases and to hear stories from local families about living with rare diseases.

The purpose of the symposium is to unite patients, caregivers and families, researchers, advocates, and students around the common goal of understanding what it means to be rare and how to support the rare disease community. The event is free and open to all who are interested in attending. The day will commence with a common morning session that includes talks from researchers, clinicians, and patients who have experience with various rare diseases. After lunch, a variety of breakout sessions will be available that will include topics such as: research in the rare disease field, caring for someone with a rare disease, advocating for rare disease support, and Genetics 101.

February 2020
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