Symposium - Rare Disease Network

Rare Disease Day 2025

Save the Date!

The 2025 Rare Disease Day Gathering will be held on Saturday, February 22. To receive additional information about the event and to be notified when event registration opens (closer to the date of the event), please click the Keep Me Posted button found below.

Theme: Bridging the Gaps

Featured keynote speakers will discuss how medical care and research around rare disease is evolving and improving and the state of rare disease in Michigan. Breakout sessions will provide opportunities for attendees to learn more about navigating insurance and finances, recent advances in research, therapy services, and rare disease-focused careers.

Opportunities to Connect

Throughout the day, there will be opportunities to explore informational tables related to rare disease as well and connect with others in the rare disease community.

Schedule

9:00 a.m.     Registration, Informational Tables and Research Posters 
9:45 a.m.     Welcome 
10:00 a.m.   How Medical Care and Rare Disease Research are Evolving and Improving 
11:00 a.m.    Break 
11:15 a.m.     Breakout Sessions 
12:00 p.m.   Lunch (free!) and Networking 
12:30 p.m.   Breakout Sessions 
1:15 p.m       State of Rare Disease in Michigan 
2:15 p.m.      Rare Disease Research Poster Presentations