Upcoming Events

Join us online February 23-27 for a week of free events revolving around rare diseases and the rare disease community! Click the button below to be redirected to the event. Before doing so, please be sure that you register for the event.

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Introducing the Rare Disease Network



Rare Disease Network is your place to connect with every aspect of the rare disease community, both locally and nationally. From patients and families, to students and teachers, and providers and advocates, we believe every voice matters. Join us in our efforts to provide holistic connections, educate the public, and serve and inspire our rare community.

Did you know?

Featured Story

"I think if you want people’s perceptions to change, then it’s important to share your story. I hope that by my continuing to share my story and experiences that it will help people to better understand rare disease and disability and hopefully be more compassionate to others like me in the future."

—Elle Hazlett

Girl in a jacket

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