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Rare Disease Network is your place to connect with every aspect of the rare disease community, both locally and nationally. From patients and families, to students and teachers, and providers and advocates, we believe every voice matters. Join us in our efforts to provide holistic connections, educate the public, and serve and inspire our rare community.
"I think if you want people’s perceptions to change, then it’s important to share your story. I hope that by my continuing to share my story and experiences that it will help people to better understand rare disease and disability and hopefully be more compassionate to others like me in the future."
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