The purpose of the symposium is to unite patients, caregivers and families, researchers, advocates, and students around the common goal of understanding what it means to be rare and how to support the rare disease community. We are pleased to host the symposium in collaboration with MSU and Spectrum Health.
Rare Disease Day 2020: Local Vision, Global Impact
Our most recent symposium occurred on February 29th, 2020 at the Prince Conference Center. Over 350 people were in attendance at the the symposium, which featured key note speakers, breakout sessions, and resources for patients and families as well as advocates. Those who attened provided great feedback and suggests and planning for the 2021 event has already begun. If you are interested in participating in the next event, please let us know! Updates will be posted here and on our Facebook page as they become available.