Featured is a recent Rare Disease Symposium hosted by Calvin University. People from local colleges and hospitals, and the rare disease advocacy and patient community gathered to hear stories, learn together, and support one another.
Community is important for thriving, for developing our identity as individuals, and for sharing resources, support, and challenges. If you are interested of hearing stories from people within the rare disease community, visit the stories page. If you are interested in learning more about resources available to the rare disease community, continue to scroll down.