Rare diseases are those that affect less than 200,000 people in the United States. However, since there are over 7,000 different types of rare diseases, on average 1 in 10 people has a rare disease. This means that most people know someone or are someone who has rare disease.
Calvin University Rare Disease Research & Support was started in response to the unmet needs of our rare disease community in West Michigan. Our goal is to reach beyond our student community to develop meaningful relationships between the University and local patients, families, providers, advocates, educators, and other authorities to help further rare disease education, awareness, and empathy. What started as research of BCS1L mutations has since expanded to include other projects in STEM, communications, education, and more giving our students and the greater West Michigan area even more ways to connect with and support our rare community.
Rare Disease Day Symposium 2023: Rare Professionals and Rare Community