RDRS Projects

Rare Disease Research & Support

1 in 10
People have a rare disease
7000+
Rare diseases have been identified
>50%
Of individuals with cancer have a rare cancer

Rare Disease Research & Support

Rare diseases are those that affect less than 200,000 people in the United States. However, since there are over 7,000 different types of rare diseases, on average 1 in 10 people has a rare disease. This means that most people know someone or are someone who has rare disease.

Calvin University Rare Disease Research & Support was started in response to the unmet needs of our rare disease community in West Michigan. Our goal is to reach beyond our student community to develop meaningful relationships between the University and local patients, families, providers, advocates, educators, and other authorities to help further rare disease education, awareness, and empathy. What started as research of BCS1L mutations has since expanded to include other projects in STEM, communications, education, and more giving our students and the greater West Michigan area even more ways to connect with and support our rare community.

Upcoming Events

Rare Disease Day Symposium 2021: Reconnecting to Community

Find out more!

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STORIES

Learn about the common experience of being rare.

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RESEARCH

Learn about our recent advances in rare disease research.

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RESOURCES

Find information, support organizations, and advocacy opportunities.

ribbon icon
STORIES

Learn about the common experience of being rare.


certificate icon
RESEARCH

Learn about our recent advances in rare disease research.


apple icon
RESOURCES

Find information, support organizations, and advocacy opportunities.

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