Rare Disease Resources

A collection of resources to support and inform our rare disease community

General Resources


When a child or family is dealing with a rare disease, it can be difficult for relatives, friends, and classmates to understand the diagnosis and how to support those affected by the rare disease. The following resources help to explain rare diseases at the appropriate age level.


High School


Do you have a resource you think we should add? Email rarediseasenetworkmi@gmail.com to let us know!

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