Team Members

Rare Disease Network is a collaboration project between Calvin University, Spectrum Health Helen DeVos Childrens Hospital, and Michigan State University. We started working together to plan the 2020 Rare Disease Day Symposium. The event was such a success that we decided to launch Rare Disease Network as a place for the rare community to connect all year round.

Amy Wilstermann, Ph.D.
Bill Houston

Professor, Director, Honors and Collegiate Scholars
Calvin University, Biology
amw26@calvin.edu

Rachael Baker, Ph.D.
Rev. James Ellis

Assistant Professor
Calvin University, Chemistry & Biochemistry
baker@calvin.edu

Caleb Bupp, MD
Rebecca Schmidt

Division Chief Medical Genetics and Genomics
Spectrum Health Helen DeVos Children's Hospital
caleb.bupp@spectrumhealth.org

Jeremy Prokop, Ph.D.
Dr. James Timmer

Assistant Professor, Pediatrics and Human Development
MSU, Pharmacology & Toxicology
Prokopje@msu.edu

Shannon Bennett
Dr. Amber Warners

Rare Disease Parent
sbennett000@gmail.com

Laura Holman
Dr. Amber Warners

Research Assistant
Spectrum Health
laura.holman@spectrumhealth.org

Elle Hazlett
Dr. Amber Warners

Communications Intern, Rare Disease Patient
Calvin University
edh9@students.calvin.edu

Additional Researchers

Jeff MacKeigan, Ph.D.
Dr. Amber Warners

Professor of Cancer Biology and Complex Diseases
College of Human Medicine at MSU
mackeig1@msu.edu

Andre Bachmann, Ph.D.
Bill Houston

Professor, Associate Chair for Research
MSU, Pediatrics & Human Development
bachma26@msu.edu

Contact Us

If you have a question, comment, or suggestion, please email rarediseasenetworkmi@gmail.com.

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