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If you have a question, comment, or suggestion, please email rarediseasenetworkmi@gmail.com.

Team Members

Rare Disease Network is a collaboration project between Calvin University, Spectrum Health Helen DeVos Childrens Hospital, and Michigan State University. We started working together to plan the 2020 Rare Disease Day Symposium. The event was such a success that we decided to launch Rare Disease Network as a place for the rare community to connect all year round.

Amy Wilstermann, Ph.D.
Bill Houston

Professor, Director, Honors and Collegiate Scholars
Calvin University, Biology

Rachael Baker, Ph.D.
Rev. James Ellis

Associate Professor
Calvin University, Chemistry & Biochemistry

Caleb Bupp, MD
Rebecca Schmidt

Division Chief Medical Genetics and Genomics
Corewell Health

Shannon Bennett
Dr. Amber Warners

Rare Disease Parent

Dan Vainner
Dan Vainner

Rare Disease Parent

Laura Holman
Dr. Amber Warners

Rare Disease Advocate

Xiaopeng Li, Ph.D.
Xiaopeng Li

Associate Professor, Pediatrics and Human Development
Michigan State University College of Human Medicine

Daniel Vogt, Ph.D.
Xiaopeng Li

Associate Professor, Pediatrics and Human Development
Michigan State University College of Human Medicine

Jeremy Prokop, Ph.D.
Xiaopeng Li

Data Science Advisor, Corewell Health
Assistant Professor, Pediatrics and Human Development, and Pharmacology and Toxicology, Michigan State University College of Human Medicine

Bart Williams, Ph.D.
Xiaopeng Li

Professor and Chair of the Department of Cell Biology at Van Andel Institute

 

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